Discussion:
Hello out there
(too old to reply)
Randy Gamble
2003-07-01 01:02:23 UTC
Permalink
Best I can give is an unqualified not sure. had double vision for 3
months last year and after a battery of tests was told they could not make
a positive diagnosis, but (wink wink) we think you have ocular
myastehnia. And that the double vision would return one day. so far it
has not, but I am keeping on this group to stay informed.
Is yours ocular or general?
Hey, anybody besides me have MG?
Go to http://www.deru.com/~sundove/ocular/ocular.htm

For some links on Ocular and Myasthenia Gravis

And

http://lists.asu.edu/archives/ocular.html

For Myasthenia Mail List
the softrat
2003-07-06 00:12:47 UTC
Permalink
Hey, anybody besides me have MG?
Yeah, Me.

I'm 60 years old, retired, and beside all the common diseases of our
era (obesity, diabetes, hypertension, etc.), I have had general MG
since I was 18. It ain't getting any better.

Have a nice day!

George D. Freeman IV
the softrat ==> Careful!
I have a hug and I know how to use it!
mailto:***@pobox.com
--
I once played poker with tarot cards. I got a full house and
four people died.
unknown
2003-08-30 18:13:26 UTC
Permalink
ME! Recently diagnosed 1st of Aug...13th had crisis was on life
support. Dealing with financial ramifications now.
Post by the softrat
Hey, anybody besides me have MG?
Yeah, Me.
I'm 60 years old, retired, and beside all the common diseases of our
era (obesity, diabetes, hypertension, etc.), I have had general MG
since I was 18. It ain't getting any better.
Have a nice day!
George D. Freeman IV
the softrat ==> Careful!
I have a hug and I know how to use it!
the softrat
2003-08-30 19:26:31 UTC
Permalink
Post by unknown
ME! Recently diagnosed 1st of Aug...13th had crisis was on life
support. Dealing with financial ramifications now.
Good Luck! Pray a lot! (You'll need it!)

George D. Freeman IV
the softrat ==> Careful!
I have a hug and I know how to use it!
mailto:***@pobox.com
--
A man without a woman is like a bicycle without a fish.
Thom
2003-09-01 00:45:14 UTC
Permalink
There doesn't seem to be a lot of action in this group.
Just some references for you:
http://pages.prodigy.net/stanley.way/myasthenia/chat.htm
http://pages.prodigy.com/lifewithmg/
AND SOME GOOD NEWS!!!:
New oral medication under test in England and Israel for MG that doesn't
have the problems current meds have. Maybe in a couple of
years...........................
Meanwhile, stay positive and listen to your body!
T
Post by unknown
ME! Recently diagnosed 1st of Aug...13th had crisis was on life
support. Dealing with financial ramifications now.
Post by the softrat
Hey, anybody besides me have MG?
Yeah, Me.
I'm 60 years old, retired, and beside all the common diseases of our
era (obesity, diabetes, hypertension, etc.), I have had general MG
since I was 18. It ain't getting any better.
Have a nice day!
George D. Freeman IV
the softrat ==> Careful!
I have a hug and I know how to use it!
DAW
2003-09-06 18:15:42 UTC
Permalink
I don't think MG ever gets better.
Interesting note;
I work at VX nerve agent demil facility. VX effects human like huge overdose
of Mestinon.
I have developing vision problems (focus - primarily right eye) and wonder
if it is progression of MG.
Any one else seeing this? (pun)
Post by unknown
ME! Recently diagnosed 1st of Aug...13th had crisis was on life
support. Dealing with financial ramifications now.
Post by the softrat
Hey, anybody besides me have MG?
Yeah, Me.
I'm 60 years old, retired, and beside all the common diseases of our
era (obesity, diabetes, hypertension, etc.), I have had general MG
since I was 18. It ain't getting any better.
Have a nice day!
George D. Freeman IV
the softrat ==> Careful!
I have a hug and I know how to use it!
Randy Gamble
2003-09-08 12:31:57 UTC
Permalink
If you are having double vision it could be a number of things. But if
you have MG, then it could be Mg, since the eyes are sometimes
effected. See:
"http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Abstract&list_uids=20332947"

and

"http://www.oculoplastics.com/news/news_ptosis/Ocular%20Aspects%20of%20Myasthenia%20Gravis.htm"
Post by DAW
I don't think MG ever gets better.
Interesting note;
I work at VX nerve agent demil facility. VX effects human like huge overdose
of Mestinon.
I have developing vision problems (focus - primarily right eye) and wonder
if it is progression of MG.
Any one else seeing this? (pun)
<JustASomeone> wrote in message
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