Post by Randy GambleDave, you're right about him selling something. I helped propogate
this newsgroup many years ago. I don't think Myasthenics know how to
use the newsgroups. ;-)
This one does. It's just that I've been lurking until I had a feel for
the group ethos..
Post by Randy GambleI don't take mestinon, I have ocular myasthenia and take prednisone, I
am in the process of changing to CellCept. I have been on 2000 mg of
CellCept for sometime, but a total of nine months. Still waiting for
it to kick in. Some say it takes about a year.
http://myasthenic.puhs.org
I would, but..
"The requested URL could not be retrieved
While trying to retrieve the URL: http://myasthenic.puhs.org/
The following error was encountered:
Unable to determine IP address from host name for
myasthenic.puhs.org
The dnsserver returned:
Name Error: The domain name does not exist.
This means that:
The cache was not able to resolve the hostname presented in the URL.
Check if the address is correct."
Post by Randy GamblePost by DAWRandy, you are first activity I have seen on this site. How much Mestinon do
you take a day?
I have mild case of MG, so should probably only call it M without the G. ;-)
After 9/11 I tried to give blood and was told MG was classified as auto
immune disease so they did not want a donation. Even though I was diagnosed
in 1965, I never knew it was classified as auto immune disease.
Post by Randy GambleOn Sat, 20 Nov 2004 15:58:19 -0500, "Romerol"
Post by RomerolI have Myasthenia Gravis and I have discovered some interesting things
about this disorder that drives it into remission
Myasthenia is odd (I suspect no-one here needs telling that) - I was
first diagnosed with it in 1983, got treated by thymectomy plus
pyrodostigmene and prednisolone. By 1985 I was on such a low
pyrodostigmene dose (and no prednisolone) that eventually the dosage was
discontinued altogether, and it continued that way until 2003 when
it reoccured very agressively (and very nearly killed me, in conjunction
with pneumonia). That got brought under control by a very hefty dose
of pyrodostigmene (8x60mg/day) and prednisolone (16x5mg/day). Since
january 2004 I've been on Aziothiaprine as well (100mg/day) which
has allowed the prednisolone dose to come down to 2x5mg one day, nothing
the next. Pyrodostigmene is down to 2x60mg/day.
Got to say I'm /very/ happy with the treatment I've had this time around
- Bronglais hospital here kept me going when the pneumonia got bad,
Morriston hospital in Swansea did a marvellous job of stabilising the
Myasthenia and the support I've had for return to work has been very
good (thank you, Shaw Trust).
--
Andy Breen ~ Interplanetary Scintillation Research Group
http://users.aber.ac.uk/azb/
"Time has stopped, says the Black Lion clock
and eternity has begun" (Dylan Thomas)